Can’t say it enough – THANK YOU!

The conference in Harrisburg was a great success due to the help of many people and I’d like to acknowledge a few here:

Donna Gibson for being Kevin's inspiration.

The 101 participants; many who traveled far distances

Those who helped at the event: Kevin Gibson, the handsome Ed Lanza, Jeff & Tresa Lohr, Cindy Walker, Jim Weiveris

The speakers: Dr. Harold Harvey, Judy Lyter, Dr. Mathew Kulke, Dr. Tom O’Dorisio, Dr. James Pingpank

The sponsors and their representatives: InterScience Institute – Mia, Delcath Systems – Jason, Novartis Pharmaceuticals – Jeff

Carcinoid Cancer Foundation for providing DVD’s of the Norfolk Conference.

Kevin Gibson, David Botera & Ric Medina who raised funds for the event through Hope in Handball.

And last but surely not least, Bob & Maryann Wahmann of CCAN whose roles & duties included: sponsor, organizer, planner, printer, problem solver, travel agent, scheduler, meal planner, registrant, purchasing agent, contract negotiator, program designer, goodies collector, bag stuffer, grant writer, grant re-writer… the list goes on and on!

From all of us who attended and benefited from the event we send a sincere thank you.

Teresa

Sat. April, 26, Harrisburg Carcinoid Conference: Directions & More

Haven't registered yet? There's still a few spots open so don't hesitate a second longer. Need a little convincing? Did you know that Harrisburg is an easy 2 hr. drive from Baltimore, Washington, D.C., and Philadelphia? From NYC you can make it in 3 hours (or 2 1/2 if you drive like my crazy brother-in-law). If you live in Pittsburgh or Syracuse, NY you can make it to Harrisburg in 4 hours. Don't like to drive? Bus and train information is below and there's always the HIA (Harrisburg International Airport).


PARKING INFORMATION, DIRECTIONS & TRAVEL OPTIONS
to Harrisburg for the Saturday, April 26th conference hosted by CCAN and PCCAN.

PARKING
Self-parking is available in the Walnut Street Garage and valet parking is provided by the hotel at the cost of $20. The cost of self-parking is included in the registration fee. Bring your parking ticket with you to be validated at the conference. Validation is not offered for valet parking. Limited metered street parking, with a limit of two to four hours, is available on Walnut, 4th, and 3rd Streets.

DIRECTIONS: to the Walnut Street/Hilton Harrisburg Parking Garage

From Philadelphia (PA Turnpike I76): Take Exit 247 (Harrisburg East). At toll plaza, continue straight on I283 North. Follow I283 North to I83 South. Take exit for I83 South. Continue on I83 to 2nd Street Exit (Exit 43 - Old Exit 23). Go down ramp to red light. Continue through red light onto 2nd Street. Continues at *.

From Pittsburgh (PA Turnpike I76): Take Exit 242 (Harrisburg West). At toll plaza, continue onto I83 North. Take I83 North to 2nd Street Exit (Exit 43 - Old Exit 23). Take exit ramp to red light. Continue through red light onto 2nd Street. Continues at *.

From Interstate 83 South (York/Baltimore/Washington DC): Take I83 North to 2nd Street Exit (Exit 43-Old Exit 23). Take exit ramp to red light. Continue through red light onto 2nd Street. *Follow 2nd Street to Market Street. Turn right immediately before the Hilton Hotel onto Market Street. After you turn onto Market Street, move into the far left lane. Make a left into the alley directly behind the Hilton. An entrance to the Walnut Street garage is on the left just prior to reaching Walnut Street. Take the elevator to the SA level (Strawberry Square Arcade). Exit the elevator and proceed straight through the double doors. Turn right and proceed to the Hilton.

From I81 (Scranton/Allentown/Carlisle): Take I-81 to Exit 66 - Front Street South (Old Exit 22). Proceed for 4 miles south on Front Street and turn left onto Market Street. Continues at ­***.

From Routes11/15 and 322/22 (Williamsport/Sunbury/State College): If traveling on Routes 11-15, at intersection of 11-15 and Interstate Route 81, take 81 North across Susquehanna River. (If traveling on Routes 322-22, exit onto Interstate Route 81 south.) Take I-81 to Exit 66 - Front Street South (Old Exit 22). ­Proceed for 4 miles and turn left on to Market Street. ***Continue on Market moving to the far left lane. You will pass the Hilton Hotel on the corner of 2nd St. and Market Street. Make a left into the alley directly behind the Hilton. An entrance to the Walnut Street garage is on the left just prior to reaching Walnut Street.

AMTRAK provides convenient daily service from Lancaster, Paoli, and Philadelphia via its Keystone Service. The Harrisburg train station is three blocks from the Strawberry Square Office

GREYHOUND Trailways and several other private bus lines provide daily service from many smaller communities not serviced by Amtrak as well as the larger communities serviced by Amtrak. The Harrisburg bus station is three blocks from the Strawberry Square Office.

HARRISBURG INTERNATIONAL AIRPORT Drive time to the Hilton is 30 min. Taxi Service is approximately $15. Call the hotel (717-233-6000) for courtesy bus information.

Conference Countdown - 8 weeks!

The Carciniod/NET conference in Harrisburg, PA is only 2 months away!

Please register early and if you are staying overnight reserve your room ASAP. We've already had to add rooms to the block we previously reserved and the hotel often is fully booked. Information about the conference is below and details and the agenda can be found at http://www.pccan.net;/ registration is at http://www.carcinoidawareness.org/.

April 26, Saturday, 9:00 am - 4:00 pm, Harrisburg, PA
DIAGNOSIS AND TREATMENT OF CARCINOID CANCER & NEUROENDOCRINE TUMORS: WHAT WE NEED TO KNOW,
Presented by the Carcinoid Cancer Awareness Network and PCCAN.

Featured speakers are carcinoid specialists Matthew Kulke, MD of Dana-Farber Cancer Institute, Boston, MA and Thomas O'Dorisio, MD of Iowa University Health Care, Iowa City; Judy Lyter; RN, MS, LPS a former oncology nurse, with Dr. Harold Harvey of Penn State Hershey Medical Center, Hershey, PA moderating.

Coffee Any One?

This Sunday: March 2nd, 1:00 pm - 4:00** pm, meet us at St. Thomas Roasters in Linglestown (Harrisburg, PA area - near Exit 72 of Rt. 81). St. Thomas Roasters offers the opportunity to gather in a relaxed setting with others who share the challenge of living with Carcinoid Cancer.

Visit www.StThomasRoasters.com for directions or call 717.526.4171 and note that this is a different location from our prior meetings.

Please RSVP with PCCAN (CarcinoidSupport@juno.com) so the cafe can adequately staff for our visit.

(**Please note that we are meeting from 1 - 4, not earlier as some flyers incorrectly stated.)

2008 WINTER & SPRING EVENTS CALENDAR

There is a lot of activity within the carcinoid community this year. For a "old timer" like me, having been diagnosed 10 years ago when there were only two carcinoid websites (Sunny Susan's and the Carcinoid Cancer Foundation), this is phenomenal! I hope you take advantage of some of these opportunities and remember that you are not alone!
Happy New Year!
Teresa

2008 Winter & Spring Calendar
PENNSYLVANIA AND REGIONAL EVENTS

Sunday, January 20th, 2:00pm – 4:00pm
The Delaware Valley Carcinoid & NET Connection Kick-off, Philadelphia, PA
The first PCCAN gathering of 2008 will be at this exciting event as we join with and support the carcinoid/NET communities in Philadelphia and the surrounding regions. Nancy Gardner, the guest speaker, will be of interest to all of us. Be sure to see the attachments and visit the new Philly web site for details- http://www.phillycarcinoid.org/ or call Suzi Garber at 610-779-2901.

Sunday, March 2nd, 1:00pm to 4:00pm
A Conversation & Coffee, Harrisburg, PA
Meet us at St. Thomas Roasters in West Hanover Township near Harrisburg. St. Thomas Roasters offers cold and warm beverages, a light menu and it's a great opportunity to gather in a relaxed setting with members of the Carcinoid/NET Community and to meet others who share the challenge of living with Carcinoid Cancer. Visit http://www.stthomasroasters.com/ for directions or call 717-526-4171.

Saturday, March 15th, 10:00am to 12:30 pm
The Familial Aspects of Carcinoid, Merrifield, VA
Capital Area Carcinoid Survivors (CACS) sponsor Dr. Stephen Wank, National Institute of Health. Contact CACS for more information: www.members.aol.com/cacsva .

Sunday, April 13th, 1:00 to 5:30 pm
The CCF 11th Annual Carcinoid/NET's Conference, New York
This event is for patients, caretakers and medical professionals. The topic is "Progress in Research and Treatment” with guest speakers Richard R.P. Warner M.D., Herbert Chen, M.D., Andrew S. Kennedy, M.D., and includes networking and survivor stories. Call 1-888-722-3132 to register or register on-line at http://www.carcinoid.org/ .

Saturday, April 26, 10:00am to 4:00pm
Carcinoid Cancer/NET Conference, Hershey, PA
This conference will feature Dr. Eugene Woltering, Dr. Matthew Kulke, and Dr. Harold Harvey. The conference is tentatively scheduled from 10 am – 4 pm. Please visit PCCAN at www.PCCAN.net for details regarding the agenda, time and location or call Teresa with at 717-576-5095.

PRESS RELEASE

PA Carcinoid Cancer Advocacy Network
Teresa Lanza
Harrisburg, PA
717.567.5095
carcinoidsupport@juno.com

United States Handball Assoc.
David Botero
Harrisburg, PA
717.798.7128
dbotero@andculture.com

FOR IMMEDIATE RELEASE
16 October 2007

“Hope in Handball, Carcinoid Cancer, andCulture” Event Scheduled for Guinness World Record™ Attempt, Raise Awareness for Local Carcinoid Cancer Organization


Harrisburg, PA – The Harrisburg Mall, located on I-83 & Paxton Street, will host a ground-breaking event, by which a team of handball players will attempt to set a Guinness World Record™ for the longest handball match. The 24-hour handball marathon exhibition will begin on Friday, October 19th at 5:30 PM and conclude on Saturday the 20th. The event’s primary objective is to create awareness of carcinoid cancer and related neuroendocrine cancers, and proceeds will be used for carcinoid cancer education and awareness in the Midstate. The players are collaborating with Teresa Lanza of PCCAN, the PA Carcinoid Cancer Advocacy Network, which is an organization that seeks to support and educate patients & families in PA.

“Hope in Handball, Carcinoid Cancer, andCulture” is being held in memory of Donna Gibson, a carcinoid patient whose untimely passing inspired her family and friends to raise funds furthering Carcinoid Cancer education and awareness efforts in Pennsylvania. These funds will come in the forms of the benevolent financial sponsorships that were made possible by the corporate citizenship of local and national partners, including Brinjac Engineering, Commerce Bank, andCulture, and Comcast.

Passersby and spectators will be encouraged to make a tax-deductible donation; and for every $5-dollars donated, a person will be eligible to take part in the “Hope” raffle. Sponsors, partners, and friends have collaborated to donate a number of exciting gift items including an authentically-signed Stephon Marbury (from The New York Knicks) jersey, a signed Tiger Woods bobblehead collector series item, gift cards to local restaurants, and many other wonderful gift packages.

This is a sanctioned event, and will be monitored by accredited witnesses; thus adhering to Guinness World Record ™ guidelines and regulations. Play is continuous, and the players will be provided with allotted 5-minute breaks to be used for resting, nourishment, and general restroom use. Three players will be involved throughout this perpetual endeavor. From Harrisburg, Kevin Gibson, a Computer Specialist for the PA House of Representatives and an ordained minister, is playing in memory of his wife, Donna. David Botero, from Hershey, is a Business Development Manager at andCulture, an integrated marketing communications agency in downtown Harrisburg. And, Ricardo Medina, originally from Reading, is a student at Temple University in Philadelphia. Each has a profound respect and commitment to the game, and advocate its growth and development in Central PA.

Together, PCCAN and the players have partnered to give Carcinoid Cancer patients a voice, and are using the sport of handball as the messaging vehicle. They are also using this opportunity to continue to promote handball in a friendly, fun, healthy, and innovative manner. The Guinness World Record™ attempt will help elevate this platform, as well as generate leverage with The Harrisburg Mall’s significant traffic.

To learn more information about Carcinoid Cancer, the dynamics behind Handball; or to learn more about the event’s sponsors, raffle items, and agenda, please visit http://www.hopeinhandball.org/

NEW: Southwestern PA Support Group!

A support group is forming in southwestern Pennsylvania!
Please contact Michael if you are interested in participating.
You can reach him through the PCCAN phone number ( 717-576-5095) or via email at michael@isletcellcancer.com.

NEW: LANCASTER SUPPORT GROUP!

The first Lancaster Carcinoid/NET Support Group meeting will be held on Sunday, Nov. 16, 2007 from 2:00 to 4:00 pm at the Church of the Apostles; 1850 Marietta Ave., Lancaster.

If you have questions or are interested in assisting with the group please call Susan at 717-898-1732 or 717-824-1572 or email her at susan288@verizon.net.

SAVE THE DATE

On May 3rd, 2008, PCCAN will host a Carcinoid Cancer/NET conference. Moderated by Dr. Harvey, our guest speakers are Dr. Eugene Woltering and Dr. David Kulke. This event is for patients and physicians!

Q & A with Dr. Harvey - Nov. 4, 2007

QUESTION & ANSWER Session with Dr. Harold Harvey

DATE & TIME:
Sunday, November 4th, 2007
2:00—4:00pm

LOCATION:
Hershey Medical Center, Hershey, PA*
Cafeteria Dining Room A

SPEAKER:
Harold Harvey, M.D.
Professor of Medicine
Division of Hematology/Oncology
Penn State Hershey Medical Center

Please RSVP with PCCAN so we can plan for
adequate seating.

*Traffic patterns and parking areas have changed due to ongoing construction. Please allow additional travel time.

HOPE IN HANDBALL: Oct 19-20, 2007 (FUNDRAISER)

Show your stripes and come to the Harrisburg Mall (located on I-83 & Paxton St.) and support the Hope in Handball, Cancer, andCulture benefit. This exhibition is a 24-hour handball marathon beginning Friday, Oct. 19th at 5:00 pm and ending October 20th as it raises awareness of Carcinoid Cancer and related neuroendocrine cancers and generates funds to support the educational endeavors of PCCAN.

This event is being held in memory of Donna Gibson, a carcinoid patient whose premature death in June inspired her family and friends to raise funds furthering Carcinoid Cancer education and awareness efforts in Pennsylvania.

Advocates will attempt to set a Guinness World Record ™, and there will be plenty of news coverage and observers. PCCAN will have a booth at this event and will need members to attend the booth, hand-out information and awareness merchandise to passers-by and chat with people who stop by. This is a great opportunity for some multi-generational bonding for those with children or grandchildren and PCCAN members are encouraged to invite friends and family to participate. There is a place for everyone at this ‘round-the-clock event!

Please contact PCCAN with any questions and join me for some fun while we create carcinoid awareness and raise funds for carcinoid education in the midstate.

Teresa

Conversation & Coffee: Sun, Aug 5th

Meet us from 1 - 4:00 pm at the St. Thomas Roasters in West Hanover Township near Harrisburg, PA for the next PCCAN meeting. St. Thomas Roasters offers cold and warm beverages, a light menu, and indoor and outdoor seating. It's a great opportunity to gather in a relaxed setting with members of the Carcinoid/NET Cancer Community and to meet others who share the challenge of living with Carcinoid Cancer.

I hope you will join us for this event which is in place of our annual picnic due to my recent surgery.

Please RSVP for this event so that St. Thomas Roasters can adequately prepare for us.

Teresa